On March 12, 2024, in Mathare, a community gathering took on a critical topic, dementia. Misunderstood by many in Kenya, the condition is often seen as a curse or simply an unavoidable part of aging. This discussion aimed to challenge these misconceptions and bring clarity to a subject long shrouded in stigma.
Findings from the Attitudes and Perceptions of Dementia in Kenya study highlighted the urgent need to bring knowledge back to the people it affects most. The Brain and Mind Institute (BMI), in collaboration with Futbol Mas Kenya, returned to Mathare not just to share research but to spark real conversations, breaking down myths, fostering understanding, and equipping families with the tools to support loved ones living with dementia.
"Community engagement is crucial in shifting perceptions and improving dementia care," emphasized Dr. Edna Bosire, the study’s Principal Investigator and Medical Anthropologist at BMI. "By increasing awareness and reducing stigma, we can ensure that individuals experiencing cognitive decline receive timely support."
Beyond raising awareness, the event provided a safe space for open dialogue. Residents shared personal experiences, asked pressing questions, and engaged directly with experts. It was an opportunity to unlearn harmful myths, such as the belief that dementia is caused by witchcraft or is a form of punishment. For many, this was the first time they had access to accurate, evidence-based information.
Rosemary Muturi, Community Coordinator for Mathare at Futbol Mas Kenya, highlighted the significance of direct engagement: "One of the most powerful aspects of this event was the ability to address these myths head-on. Sitting with the community, listening to their concerns, and guiding them toward the right resources makes a real difference. Research is important but bringing it back to the people and seeing its impact firsthand is what truly drives change."
Transforming perceptions requires more than awareness, it demands action. Early detection, accessible care, and community-driven support are essential in improving the quality of life for those affected. Kevin Irungu, Methodological Coordinator at Futbol Mas Kenya, underscored why such engagement is vital. "In informal settlements like Mathare, dementia is often shrouded in stigma, preventing people from seeking help. Many don’t know how to support loved ones living with the condition. By engaging directly with communities, we not only share knowledge but also equip them with tools to recognize symptoms early, seek appropriate care, and create a more supportive environment," he said.
This event was just one step in a broader effort. The Attitudes and Perceptions of Dementia in Kenya study underscores the urgent need for community-driven awareness and policy action. By translating research into practical solutions, prioritizing early diagnosis, improving access to care, and fostering grassroots support, we can ensure that dementia is not faced in isolation, but with knowledge, dignity and collective action.
